Living with endometriosis

So yeah, I inadvertently got diagnosed (unofficially) last summer. The extreme pain got too great for me to handle and I was desperate. The fun thing about endometriosis is that you can get it at anytime, at any age apparently. Mine got triggered by having the Mirena IUD for some reason, and then it was a full-on ride to pain town for years. 😦 It does not respond to painkillers, at all. I have burned a hole in my stomach from trying to use ibuprofen with Tylenol to try to function, and it never worked.

On bad days I am vomiting in pain with extreme bloating and discomfort. I have chronic fatigue with terrible back pain with flare-up days and my stomach is in a turmoil with IBS-like symptoms. It’s miserable.

On good days I can function, I am not dizzy and incredibly fatigued, my stomach looks NORMAL and sometimes even *gasp* Good??

Sadly, even with a new medication (Visanne) that I started taking about 5 months ago, I don’t have all good days. It started off terrible- horrible periods that hemorrhaged, awful cramps, bloating, back pain, exhaustion- and then for about 2 blissful months I had nothing! It felt incredible!

And then it immediately relapsed and now I have bad weeks again. 😦 the doctor I am seeing- who is a specialist- said to hang on and it should be getting better, but so far it has NOT gotten better. My bad days aren’t as bad as they were, but they still suck a 100000% worse than those good 2 months I had.

I am starting to wonder if Visanne is enough, or I should start looking at other options, like a surgical intervention. This is a life-altering disease, and causes severe, chronic pain and discomfort. I hate living with it, and it greatly affects my personal quality of life.

Welcome to 2020. This is your year, right?

So we are on the eve of the new year and wondering if 2020 will really be better? I guess when I get grouchy and tally up the never ending list of injuries, sicknesses and complaints I have about 2019, then I’m SURE 2020 will be better. But…none of it was permanent (not really), and so what am I complaining about?

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Riding a HIGH! 

Well, I wish my running had executed better- I had a fabulous race season last year, culminating in winning my age group (I NEVER take this for granted- it’s a tough crowd for sure, and I am 100% an amateur slouching jogger). I was riding a high when I won my first race – the very small MEC Royal Roads Half Marathon in May 2019. It felt fantastic!

And then, I guess when you go up high, you fall even further. I distinctly remember bragging to a friend about how I ‘never need to take rest days’ when we had both signed up for a marathon training group. This was it! I was going to race a marathon in the fall, the Okanagan Sunrype Marathon, and qualify for Boston!

……..

Until I immediately got injured for oh, the rest of the summer. It started with a weird twinging in my shins, inside just above my ankle bones. When it started hurting, I started wondering WTF it was but I didn’t really have to wonder for long- that same week I tripped over an unmarked hose going across a sidewalk that the construction crews were using, and face-planted quite dramatically into a curb. I slid for about a foot on my stomach, and wound up splitting my lip, gravel in my teeth, and a few scrapes and a banged up left shoulder (for the fourth time…my freaking shoulder.)

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It definitely hurt- a lot! But my stress fractures were getting even worse, so for once I was glad that I looked so terrible on the outside. It matched what I felt on the inside.

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Those wounds healed amazingly fast, which was funny because my shin splits and stress fractures sure didn’t. Oats was also lame the same week that I face-planted and developed shin splints, and we had to scratch out of the biggest show of the year for us. A cursed week (the week after my birthday). This also spearheaded a few months where I lost confidence in myself, my horse and my own body.

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I tried and tried to run for oh, the next three months and never could- It felt like someone was grabbing my leg and pulling really hard. I had trouble walking for a bit too.

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Ow, my leg…The success of shockwave was undeniable though! 

At the same time, I had been struggling with some pretty severe abdominal pain and cramping, for oh, 1. 5 years…I finally got it addressed this summer by having my Mirena removed, going back on Seasonale, and felt some blessed relief! I also still have an abdominal ultrasound scheduled in a few weeks, that I had to reschedule because I had the flu when I was supposed to have the appointment…

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The next day- it healed really well! 

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And that takes me to the fall, where I was kind of bummed about dropping out of the marathon but realistically I knew there was NO WAY I could run it. I had started back running for oh…1  or 2 weeks when the marathon started. I ran the 10k and placed third! (really shouldn’t have, but it was not a competitive field, ha), and my husband ran the marathon and did really well! I was so jealous!

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I rode Oats in a horse show and it just…eh. We had a few very inconsistent shows, where he felt weird and I felt really angsty.

Our fabulous roll ended abruptly by getting disqualified from our jumper rounds at CDRC for too many refusals. A very harsh contrast to the fun and happy success of the July show there indeed! And a good cap to what had really become a shitty, miserable season.

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At least we looked cute??

I also ran the MEC Halloween half marathon and finished it, happily. It was extremely humbling, running 10 minutes slower and only being back to running for oh…Three weeks? But I did it.

And then I bumbled along, getting screwed by fate again when I proclaimed loudly at work that I ‘NEVER take a sick day!’ …Yeah you guessed it. I immediately got the flu for three effing weeks. I had to sit around at home on the couch feeling miserable for 5 days. A lot of sick days that week…It took forever to shake that sickness and incredible fatigue and weakness/exhaustion.

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Finishing my longest run in 4 months! 

And then when I did get to take some time off, blessedly at Christmas, I went for a run and was really enjoying myself, blasting along and tried a little sprint at the end of a solid 20k run- and BOOM! My kneecap instantly had excruciating pain under it.

I limped home and limped around for the next effing week. I kind of knew it was not that serious, but damn it hurt and I still have trouble with stairs (going down in particular) AND now I am terrified of running fast or whatever. Why am I so fragile?

Merry Christmas to me>>???

And a happy New Year??

I feel like my resolution is this: Never make bold proclamations ever again, because this year they clearly bit me in the face. UGH.

We were wild

I had a really nice weekend, despite the fact that I am still sort of in the grips of the ‘death cold’ and Ian picked it up as well, UGH. My energy levels aren’t great still, I am coughing up grossness and blowing my nose every two seconds still. BUT I was able to get off the couch to do things, so that is a big win!

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And just in time too, because I had lots of plans for this weekend- I didn’t go ride on Friday, partly due to my extreme fatigue/sickness, but also I had to make approximately one million cookies to decorate as part of my holiday festivities for my friends on Saturday night. I had a few friends over and we had a blast! Cocktail hour with snacks/appetizers and mulled wine and mulled cider, which is my specialty, and then our activity- cookie decorating, and then dinner! It was such a lovely night.

I did get a lot of running and riding in, though my run on Saturday was short and miserable due to my endless coughing, nose blowing, and incredible fatigue. I only ran like 6k I think? And it felt tough.

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I wasn’t super happy with my ride on Oats on Sunday- I got way too wrapped up in angsty perfection-chasing, which is NOT normal for me. I had to take a break, re-set my brain and let things go. This includes me clenching my jaw and feeling tense…Sheesh. Every time I think I’m past that kind of tension, it comes roaring back. No fair!

Oh well, I am planning on a fun bareback ride today, and in reality, I had a GREAT ride on Saturday- he felt like riding a cloud! Smooth, effortless, easy. I loved it.

Plus the weather has been fantastic- warm, I was running in shorts, and not even that rainy! How amazing is this, compared with the awful deep freeze of a few weeks ago? Aren’t we so lucky? I love it!!

End of the season: Bazan Bay 5k Race Recap!

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Faces of Anguish: The 5k… Photo by Lois D’Ell.

Ah man, as I write this- I’m struggling with weird crushing fatigue and muscle weakness/exhaustion. It’s not a good feeling, and I felt dizzy; had nausea and lightheadedness at the work gym on my lunch break today. Lovely. I had this last week, sort of on-and-off since I got back from Mexico. What is with travelling and me getting sick and/or facing crushing exhaustion?? Anyone have ideas?!

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Bazan Bay last year. This is my last year in my age-catgory, sob!

Anyway on to the race- I took Saturday VERY easy (see week of exhaustion/fatigue and a cold), so I was feeling sort of fresh but also with some strange muscle fatigue happening (I am finding it hard to type, my fingers feel tired and I am struggling to make a fist?!?).

I have been taking my iron pills and b12, as well as magnesium, but I’m really wondering what is going on…

So yeah, the race. Last year I had a really fantastic rally, and managed to break 20:00 minutes for the 5k. This year? Ha, nope. My ego was slightly bruised by this, but not by a lot- I still ran a very respectable 20:09. So, close but no cigar. Better than I likely had a right to run, to be honest, with the craptacular way I have been feeling this past week and now week!

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Faces of Anguish II: the finish of the 5k. Photo by Lois d’Ell. 

I started pretty quick and immediately it felt hard. My second Km was slow- too slow at 4:06…Shit. I bounced off another girl as I got boxed in pretty badly. Hit the turnaround and my previously cocky feeling of ‘this is ok, I can do it!’ evaporated. It was getting hard, really challenging. I was breathing hard, and starting to suffer.

In a weird sense of deja-vu, a girl who was racing this year was shouting and gasping and screaming, just like last year. It was bizarre. I think if each year you sound like you’re dying, maybe the 5k just isn’t…for you.

I saw some other runners who usually smoke me, HARD, and I passed them and they did not catch up. This surprised me- the 5k is a weak distance for me, and it sucks. I was running alone with a few men, and kind of wished for a woman to really spur me on! Like usual, the finish line was so far away and cartoonishly stretched further when I was running to it- I was freaking wiped!

I finished and briefly contemplated puking, like the guy I saw on his hands and knees throwing up after the race. Yes, it’s that fun! I got my breathing under control, found my husband and we trudged back to the gym. Damn, that was difficult. Weather was pretty good though, not too windy and not raining. It’s been pretty lousy these days so I’ll take what I can get!

The ceremony after was great though, I got third in my age category (this surprised me, it’s not a very competitive time for a fairly competitive race), and I was first in my age-group. PLUS I was able to get a chiropractic treatment from my chiropractor, because they were there as the sponsors of the race and were providing treatments. Score! Nice eh? It’s a very well run race, safe with great volunteers, snacks and treatments. I do highly recommend people trying their hand at a fast, brutal 5k to do it here- it’s a personal best-type course.

Sad to see another season go, but each race season teaches me something about myself. Isn’t that always a good thing? I age up next year, so I bid farewell to my age-group buddies 🙂 Felt nice to make a connection this year with some lovely ladies.

 

 

Read my mind: Jump lesson with Oats

Now before I start with the glowing praises of old Oats, I have to start with reports of him being a little shit-disturber and getting out of his paddock last night and causing a ruckus, going from paddock to paddock to rile up and squabble with allllll of the other horses…OATS! God!

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The culprit! 

Now this is likely my fault, as when I finished my lesson my friend pointed out that Oats hadn’t been given his hay, so I put him in his paddock, moved his hay bag to his paddock, and …probably forgot to re-latch his gate. Argh!

Oh well… On to the lesson! I was feeling weirdly anxious. I’ve been struggling with just crushing fatigue this week, and a fast-moving cold, thanks in part to travel and breathing in that fine, recirculated airplane air. My muscles felt super weak, and I started feeling lightheaded at the gym almost every day. I was dragging myself around. It sucks.

So, exhaustion + sickness + lessons = success? Ha not quite, but it wasn’t the shitshow I was anticipating. It was fun! We worked on a rollback turn (that I sucked out loud at, I could NOT figure out how to jump, and then look, THEN turn, in that sequence). But I enjoyed the process!

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From a few weeks ago. I love jumping this guy! 

We then worked on a small bending line, which rode much better. Oats was great for it, bending lines are his expertise. We strung it together into a small course, and I could feel myself fading a bit, having trouble keeping him straight to the jumps. I even went off-course and forgot where I was going… I think because of the fatigue/exhaustion that I was dealing with. (And I think that’s how I left the gate open too…).

It wasn’t the thrilling jump lesson of a few weeks ago, where we TROTTED a 2’9” warm up fence, but you know what? With my incipient weakness and limp riding, it didn’t need to be, haha. Leave that for another day. I know myself by now, and I’m fine with what each day presents.

Oats was such a good boy though, I just love jumping him! Even if he can be a little turd sometimes.

Yes, I’m a witch too

A three-day week and where does it leave me? With a cold, UGH! I suspect the long-dragging weirdness from when I got back from Mexico has well and truly bodyslammed me. Ah well, I had it coming. The late night from New Year’s Eve did me in, and my virus decided to hop in!

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Gidget dove into my rabbit’s cage while I was cleaning it for some tasty treats…Yuck!! 

That meant my jump lesson last night was …not great. I felt very nauseous with rolling waves of ‘going to puke’ feeling pretty much allll day. I couldn’t figure that one out? Sure I was getting a shitty cold (sore throat, swollen throat, coughing, body aches) but the waves of nausea? Wha?

Plus we had practically a monsoon over the past two days- no joke, apocalyptic rains. So, I ran to and from work in what can only be described as a ‘deluge’ while fighting some weird sickness. = success? Um, no. What was I thinking??

So I went into my ride fighting off the urge to puke. But I wanted to ride so badly!! Ha. Problems equestrians face eh? I had a jump lesson to get to, dammit! We worked on a small gymnastic grid, focusing on positioning in two-point. By the third jump, I’d have it! But, it took me three jumps each time to get it, soooo…Yeah. This theme basically didn’t change, ha.

Oats was feeling GREAT though!! Full of beans and energy, yay! Of course on a day where I feel terrible, he feels amazing. Life, amirite?

Ah well, at least I did it. Came home, felt sort of hungry for once and ate a reasonable dinner. Proceed to not sleep all night due to coughing and crushing sinus pain. Lovely… Feel kind of washed out and lame today, just in time for a work day and a dressage lesson. Yay? Kill me.

The Dream is Over

Of jumping lessons in the outdoors at night for me, sadly. We attempted to finish up my last lesson in the outdoor last night, and it got too dark, plus the footing was quite deep and Oats was struggling a bit in it. He had his shoes removed, and his trot was good but his canter felt ‘mushy’ like I just didn’t have enough horse there for jumping.

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Back to blurry screengrabs instead of nice crisp shots. Ah well…Video thanks to Nicole.

Compared with our fab jump lesson last night, it was…disappointing. But, jumping can’t be fantastic every time, can it? And we still had a good focused warm-up, and went straight into a fairly decent course outdoors, where I was quite pleased with Oats’ effort. Jumps stayed small.

It got dark, and we zipped into the indoor to wrap up our jumps. We worked over a few small jumps, and then over a course. I even demanded Nicole raise the jumps! (ok, demanded is a strong word. I suggested it! Go me!). And it was…very sloppy. Ha. Yikes my eq was definitely sucking. My leg (right leg) was a windshield wiper. My upper body? Throw at the horse! Eeeghhh.

In my defense, I have been feeling like crap over past few weeks (on and off since last week). I felt terrible yesterday, grinding fatigue, out of breath, sore throat, and my stomach was killing me with zero appetite. I literally had this feeling like if I stopped moving I would probably collapse and not be able to get back up again. So I kept running, moving, doing chores, getting dressed, going to riding and anytime I stopped moving, I was literally wavering on my feet. Lovely. Anyways, it sucked.

Add on to that my crushing insomnia and you have a recipe for a fabulous week…

But I rallied for my jump lesson! I had this sense that Oats was feeling similarly to me, ha. He was asleep on his feet in his shelter when I came to get him to tack up. Anyways, I am really hoping for some sleep tonight, and Oats is also getting the night off in preparation for my next dressage lesson on Friday. Fingers crossed we are all feeling better by then!!

So far no sore throat today, but stomach ache remains and my eyes are so watery from fatigue it looks like I have been crying. Ahhh.

Run.Rest.Ride.Repeat

An important part of racing is rest.

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Wish it was summer and we were enjoying the good life…Oats takes his rest very seriously.

Now I just need to tattoo that to my forehead, backwards, so I can learn my lessons haha. I am on the opposite spectrum of most – taking it ‘easy’ or days off can be very psychologically challenging for me. Therefore, the week before a race is often fraught with worries about lagging, feeling heavy or slow.

I make an attempt to scale back the week before in a big way.

What does this look like this week? Well things vary, but ideally…

  • Monday- light gym workout with pushups/stretching.
  • Monday night- like, a 15 minute ride on Oats haha. I was tired!
  • Tuesday- Not running to work this week! No treadmill run at the gym and light stretching only, with my rehab exercises.
  • Tuesday night- No dressage lesson. Light ride on Oats.
  • Wed – Not running to work, and I might do some weight machine work with stretching/rehab.
  • Wed night- day off riding! Bathroom cleaning and TV watching night.
  • Thursday- Day off working out and going out for lunch. Go me! I almost never do this. As a creature of habit, it makes me feel uncomfortable when I deviate from my routines.
  • Thursday night- jump lesson!
  • Friday- Light barbells work with stretching/rehab exercises. No squats/cardio warmups. 5k total jog to Dr’s office for foot treatments in the AM.
  • Friday night- drinking wine 😉 Day off riding.
  • Saturday- Light ride on Oats, and no hills or any other runs.
  • Saturday night- no wine. Boo!

So that’s my plan and I am sticking to it!

That’s just what you are: Week update

Honestly haven’t been feeling it this week. Haven’t been feeling anything pretty much.

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Me this whole freaking week.

Work has been psychotically busy and a real pressure-cooker. It’s left me without a blogging voice, hopefully temporarily.

I have been riding and actually that’s been going fine! Had a nice lesson yesterday and felt really good, in synch and happy with dear old Oats. Funny, because I was SO grouchy yesterday before riding (thanks to work and my persistent health issues this week). Grouchy, exhausted, bone-crunching fatigue, bloating, allergies that are making it impossible to breathe at anytime, particularly at night…yeah. Perfection.

BUT riding always brings it home for me, and I LOVE it.

A fun jump lesson, and the mistakes that happened were all mine and I can own it. Mistakes happen, and I move on and don’t make them in the second half of my course. That’s fine. Oats is a good and honest pony, and any screwups were mine.

I didn’t ride on Tues- thank god my lesson was already cancelled- because of already mentioned health issues. I staggered home and was seriously worried I was going to collapse on my way. I was so tired. My limbs felt like they weighed a thousand pounds. I was dizzy and unbalanced. I was so out of it, and could barely drag my body home. My gym workout that I usually do at lunch? I spent it laying on a gym mat with my eyes closed. god.

Spent the evening sleeping on the couch. WTF? I never do that! But yeah…This was to set the tone for my miserable week of allergies-bloating-crushing fatigue-allergies-bloating-cramps-fatigue…UGH.

So yeah, not feeling anything in life right now. Still love my pony, my fraking dog that spent the night scrambling over me and licking herself loudly…maybe not her right now, ha.

Four day week? Feels more like a month.