Living with endometriosis

During a flare-up. Bloating for weeks and it’s terrible.

Me normally, no flare-up.

So yeah, I inadvertently got diagnosed (unofficially) last summer. The extreme pain got too great for me to handle and I was desperate. The fun thing about endometriosis is that you can get it at anytime, at any age apparently. Mine got triggered by having the Mirena IUD for some reason, and then it was a full-on ride to pain town for years. 😦 It does not respond to painkillers, at all. I have burned a hole in my stomach from trying to use ibuprofen with Tylenol to try to function, and it never worked.

On bad days I am vomiting in pain with extreme bloating and discomfort. I have chronic fatigue with terrible back pain with flare-up days and my stomach is in a turmoil with IBS-like symptoms. It’s miserable.

On good days I can function, I am not dizzy and incredibly fatigued, my stomach looks NORMAL and sometimes even *gasp* Good??

Sadly, even with a new medication (Visanne) that I started taking about 5 months ago, I don’t have all good days. It started off terrible- horrible periods that hemorrhaged, awful cramps, bloating, back pain, exhaustion- and then for about 2 blissful months I had nothing! It felt incredible!

And then it immediately relapsed and now I have bad weeks again. 😦 the doctor I am seeing- who is a specialist- said to hang on and it should be getting better, but so far it has NOT gotten better. My bad days aren’t as bad as they were, but they still suck a 100000% worse than those good 2 months I had.

I am starting to wonder if Visanne is enough, or I should start looking at other options, like a surgical intervention. This is a life-altering disease, and causes severe, chronic pain and discomfort. I hate living with it, and it greatly affects my personal quality of life.

Welcome to 2020. This is your year, right?

So we are on the eve of the new year and wondering if 2020 will really be better? I guess when I get grouchy and tally up the never ending list of injuries, sicknesses and complaints I have about 2019, then I’m SURE 2020 will be better. But…none of it was permanent (not really), and so what am I complaining about?

Riding a HIGH! 

Well, I wish my running had executed better- I had a fabulous race season last year, culminating in winning my age group (I NEVER take this for granted- it’s a tough crowd for sure, and I am 100% an amateur slouching jogger). I was riding a high when I won my first race – the very small MEC Royal Roads Half Marathon in May 2019. It felt fantastic!

And then, I guess when you go up high, you fall even further. I distinctly remember bragging to a friend about how I ‘never need to take rest days’ when we had both signed up for a marathon training group. This was it! I was going to race a marathon in the fall, the Okanagan Sunrype Marathon, and qualify for Boston!

……..

Until I immediately got injured for oh, the rest of the summer. It started with a weird twinging in my shins, inside just above my ankle bones. When it started hurting, I started wondering WTF it was but I didn’t really have to wonder for long- that same week I tripped over an unmarked hose going across a sidewalk that the construction crews were using, and face-planted quite dramatically into a curb. I slid for about a foot on my stomach, and wound up splitting my lip, gravel in my teeth, and a few scrapes and a banged up left shoulder (for the fourth time…my freaking shoulder.)

It definitely hurt- a lot! But my stress fractures were getting even worse, so for once I was glad that I looked so terrible on the outside. It matched what I felt on the inside.

Those wounds healed amazingly fast, which was funny because my shin splits and stress fractures sure didn’t. Oats was also lame the same week that I face-planted and developed shin splints, and we had to scratch out of the biggest show of the year for us. A cursed week (the week after my birthday). This also spearheaded a few months where I lost confidence in myself, my horse and my own body.

I tried and tried to run for oh, the next three months and never could- It felt like someone was grabbing my leg and pulling really hard. I had trouble walking for a bit too.

Ow, my leg…The success of shockwave was undeniable though! 

At the same time, I had been struggling with some pretty severe abdominal pain and cramping, for oh, 1. 5 years…I finally got it addressed this summer by having my Mirena removed, going back on Seasonale, and felt some blessed relief! I also still have an abdominal ultrasound scheduled in a few weeks, that I had to reschedule because I had the flu when I was supposed to have the appointment…

The next day- it healed really well! 

And that takes me to the fall, where I was kind of bummed about dropping out of the marathon but realistically I knew there was NO WAY I could run it. I had started back running for oh…1  or 2 weeks when the marathon started. I ran the 10k and placed third! (really shouldn’t have, but it was not a competitive field, ha), and my husband ran the marathon and did really well! I was so jealous!

I rode Oats in a horse show and it just…eh. We had a few very inconsistent shows, where he felt weird and I felt really angsty.

Our fabulous roll ended abruptly by getting disqualified from our jumper rounds at CDRC for too many refusals. A very harsh contrast to the fun and happy success of the July show there indeed! And a good cap to what had really become a shitty, miserable season.

At least we looked cute??

I also ran the MEC Halloween half marathon and finished it, happily. It was extremely humbling, running 10 minutes slower and only being back to running for oh…Three weeks? But I did it.

And then I bumbled along, getting screwed by fate again when I proclaimed loudly at work that I ‘NEVER take a sick day!’ …Yeah you guessed it. I immediately got the flu for three effing weeks. I had to sit around at home on the couch feeling miserable for 5 days. A lot of sick days that week…It took forever to shake that sickness and incredible fatigue and weakness/exhaustion.

Finishing my longest run in 4 months! 

And then when I did get to take some time off, blessedly at Christmas, I went for a run and was really enjoying myself, blasting along and tried a little sprint at the end of a solid 20k run- and BOOM! My kneecap instantly had excruciating pain under it.

I limped home and limped around for the next effing week. I kind of knew it was not that serious, but damn it hurt and I still have trouble with stairs (going down in particular) AND now I am terrified of running fast or whatever. Why am I so fragile?

Merry Christmas to me>>???

And a happy New Year??

I feel like my resolution is this: Never make bold proclamations ever again, because this year they clearly bit me in the face. UGH.

What’s life without losers

Last week…Well, let’s wipe it off the map and start over, shall we?

Same girl, same.

I spent the majority of the week feeling HORRIBLE. Insane bloating that would come on later in the afternoon, cramping from hell so severe that I couldn’t sleep, was writhing in pain for days, painkillers couldn’t even remotely touch it, I took so many that I got sick… And had what felt like a fever by Thursday. It had gotten THAT bad. Very reminiscent of the episode in May, where I was so sick/cramping that I couldn’t function.

So, that was great (sarcasm)… And anyways, just miserable.

I didn’t have my lesson on Thursday because it was basically a monsoon, and the arenas were closed due to the resurfacing of the outdoor arena- (thank god, because I couldn’t stand up without feeling faint or like I was going to puke), and we are rescheduled for this week.

Oats: Oh, hey…You’re here early today? 

I’m still injured, just had my last day of shockwave today! The three-week countdown is ON! I also cancelled my marathon. I still have to wait out about three weeks…When my marathon was supposed to be in a month. HAH, life, you really screwed me BUT good this time!!

Fortunately amidst all this bitching, Oats has been a very good boy and a real joy to ride. Love him!!! 🙂 And I had a nice weekend, the weather was not great, but I had time to enjoy a cocktail and dinner with a friend on Friday night at Chorizo & Co., and then time for a nice Tod Creek cider (blueberry! Highly recommend!) with my husband in the afternoon on Saturday. All in all, a quite and pleasant weekend.